Referred to as EB, this rare genetic skin disease impacts approximately 25,000 individuals and affects the collagen (protein) which is the ‘glue’ that binds the skin layers together. Think of the skin as a lawn of grass – without its roots, it is unable to hold the grass in place.
The Butterfly Children Fund is a non-profit organization with a goal of raising awareness, advancing fundraising efforts, and improving the quality of life for families of children with Epidermolysis Bullosa.
The Butterfly Children Fund is dedicated to supporting families impacted by EB and creating hope and change for the EB Community through financial assistance, the Camp Spirit Colorado experience, and helping to support and further research efforts.
Let’s get you ready for the journey. Here’s everything you need to know to get prepared for camp.
Not sure what to bring? Click below for a detailed list of what to pack and what to leave at home.
Join our team of medical professionals and others dedicated to the EB community.
